Today was a day of firsts. The picture on the left is the first time Wil was able to be put in a baby swing. The picture on the right was the first time Wil was able to wear an outfit. These pictures were taken around the end of March 2000.
I was so excited the day Wil could wear clothes. I guess it made me feel that he was better and things seemed a little more towards the 'norm'. Of course because of the tubes we needed to watch what kind of clothes Wil wore, they needed to button. Wil was around two and a half months old. He was completely off the ventilator and was being NG tube fed ( through the nose). If you look at Wil's hand in the right picture you can see how his hand is turned in like he's making a fist. His hands stayed like that for about a year. Physical and Occupational Therapy helped with that, but he still, at six, has mirror image. If the right hand does something the left copies. He's aware of it and tries really hard to control it. One of these days, I suppose.
2 comments:
Yay for Wil...he looks great! My daughter was born with a giant omphalocele (10/9/2006) and I remember the day she wore her first outfit at the NICU. It made things feel "normal" in our journey too.
All the best for will and for the whole family..
I gave birth last June 24,2011..My baby was born with cloacal exstrophy..He underwent surgery...unfortunately, he wasn't able to make it..he only lived for 4 days..He was our first baby...I dont' know what could be the reason for that anomaly...
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