This picture was taken a day before Wil had his myelo repair. On Saint Patricks Day, March 17th, Wil had a seven hour surgery to repair his lipomyelocystocele. Everything went great! His back was now flat. It was hard to adjust to the way Wil looked with out his 'shell'. ( for me) For over two months my baby looked a certain way and I was use to it, the change kind of freaked me out a bit. His 'shell' weighed about a pound (estimate). It was much larger than when he was first born. I look at the picture and I 'm amazed with it. It's hard to believe now that Wil had that on his back. Now he just has some fatty tissue and a portion of it sticks up a bit. We use to tell Wil that he had a tail and only really cool kids have tails. Our oldest son wanted a tail and he'd go to school bragging to the other kids that his brother had a tail. Our friends children wanted tails, it got ugly.... we had to stop!!!
It just seemed a lot more fun than to explain to a child, "You had lipomyelocystocele repair, and when they removed the excess you didn't quite have a normal looking bum". He's six now and half the time he will still refer to his bum as his tail. I love it!!!
No comments:
Post a Comment